The about me post

 Can be found here!

Monday, 1 December 2008

Ive done 76 out of the 132 stupid things (but I might have got the math wrong!)

Do this and repost it with the title:
I've done X out of the 132 stupid things.

(I'm not quite sure how some of these things are stupid, but never mind!)

Level 1
(x ) Smoked A Cigarette
( ) Smoked A Cigar
(x) Kissed A Member Of The Same Sex
(x) Drank Alcohol

SO FAR: 3

Level 2
(x) Are / Been In Love
(x) Been Dumped
( ) Shoplifted
( ) Been Fired
( ) Been In A Fist Fight

SO FAR: 5

Level 3
(x) Had A Crush On An Older Person
(x ) Skipped School 
( ) Slept With A Co-worker
(x) Seen Someone / Something Die

SO FAR: 8

Level 4
(x) Had / Have A Crush On One Of Your Facebook Friends
(x) Been To Paris (i'm going in January so it counts)
( ) Been To Spain
(x) Been On A Plane
( ) Thrown Up From Drinking

SO FAR: 11

Level 5
( ) Eaten Sushi
( ) Been Snowboarding
( ) Met Someone BECAUSE Of Facebook
( ) Been in a Mosh Pit

SO FAR: 11

Level 6
( ) Been In An Abusive Relationship
(x) Taken Pain Killers 
(x) Love/loved Someone Who You Can't Have
(x) Laid On Your Back And Watched Cloud Shapes Go By
(x) Made A Snow Angel

SO FAR: 15

Level 7
(x) Had A Tea Party
(x) Flown A Kite
(x) Built A Sand Castle
(x) Gone mudding
(x) Played Dress Up

SO FAR: 20

Level 8
(x) Jumped Into A Pile Of Leaves
(x) Gone Sledging
(x) Cheated While Playing A Game (the game WAS Cheat...)
(x) Been Lonely
(x) Fallen Asleep At Work / School

SO FAR: 25

Level 9
( ) Watched The Sun Set
( ) Felt An Earthquake
( ) Killed A Snake

SO FAR: 25

Level 10
(x) Been Tickled
( ) Been Robbed / Vandalized
( ) Been cheated on
(x) Been Misunderstood

SO FAR: 27

Level 11
(x) Won A Contest
( ) Been Suspended From School
(x) Had Detention
( ) Been In A Car / Motorcycle Accident 

SO FAR: 29

Level 12
( ) Had / Have Braces
(x) Eaten a whole pint of ice cream in one night
( ) Danced in the moonlight

SO FAR: 30

Level 13
(x) Hated The Way You Look 
(x) Witnessed A Crime
( ) Pole Danced
(x) Questioned Your Heart
(x) Been obsessed with post-it-notes

SO FAR: 34

Level 14
(x) Squished Barefoot Through The Mud
(x) Been Lost
( ) Been To The Opposite Side Of The World
(x) Swam In The Ocean
(x) Felt Like You Were Dying

SO FAR: 38

Level 15
(x) Cried Yourself To Sleep
(x) Played Cops And Robbers
(x) Recently Colored With Crayons / Colored Pencils / Markers
(x) Sang Karaoke (does Guitar Hero and Rock Band count?!)
(x) Paid For A Meal With Only Coins

SO FAR: 43

Level 16
(x) Done Something You Told Yourself You Wouldn't
( ) Made Prank Phone Calls
( ) Laughed Until Some Kind Of Beverage Came Out Of Your Nose
( ) Kissed In The Rain

SO FAR: 44

Level 17
(x) Written A Letter To Santa Claus
( ) Watched The Sun Set/ sun rise With Someone You Care/Cared About
(x) Blown Bubbles
(x) Made A Bonfire On The Beach or anywhere

SO FAR: 47

Level 18
( ) Crashed A Party
( ) Have Travelled More Than 5 Days With A Car Full Of People
( ) Gone Rollerskating / Blading
(x) Had A Wish Come True
( ) Been Humped By A Monkey (WTF?!)

SO FAR: 48

Level 19
( ) Worn Pearls (I don't suppose they were real)
( ) Jumped Off A Bridge
(x) Screamed "Penis" or "Vagina"
( ) Ridden an elephant

SO FAR:49

Level 20
(x) Got Your Tongue Stuck To A Pole/Freezer/ice Cube/ Ice Lolly
( ) Kissed A Fish
(x) Worn The Opposite Sex's Clothes
(x) Sat On A Roof Top

SO FAR: 52

Level 21
(x) Screamed At The Top Of Your Lungs 
( ) Done / Attempted A One-Handed Cartwheel
( ) Talked On The Phone For More Than 6 Hours
( ) Recently stayed up for a while talking to someone you care about

SO FAR: 53

Level 22
(x) Picked And Ate An Apple Right Off The Tree
(x) Climbed A Tree
(x) Had/Been In A Tree House
(x) Been scared To Watch Scary Movies Alone

SO FAR: 58

Level 23
(x) Believed In Ghosts
( ) Have had More Then 30 Pairs Of Shoes
( ) Gone Streaking
( ) Visited Jail

SO FAR: 59

Level 24
( ) Played Chicken
( ) Been Pushed into a pool with all your clothes on
(x) Been Told You're Hot By A Complete Stranger
(x) Broken A Bone
(x) Been Easily Amused

SO FAR: 62

Level 25
( ) Caught A Fish Then Ate It Later
( ) Made A Porn Video/got asked to make one
( ) Caught A Butterfly
(x) Laughed So Hard You Cried
(x) Cried So Hard You Laughed

SO FAR: 64

Level 26
(x) Mooned/Flashed Someone
(x) Had Someone Moon/Flash You
(x) Cheated On A Test
(x) Forgotten Someone's Name
( ) French Braided Someone's Hair
(x) Gone Skinny Dipping (not since I was a kid, mind you!)
( ) Been Kicked Out Of Your House
(x) Tried to hurt yourself

SO FAR: 70

Level 28
(x) Rode A Roller Coaster
( ) Went Scuba-Diving/Snorkeling
(x) Had A Cavity
( ) Black-Mailed Someone
( ) Been Black Mailed

SO FAR: 72

Level 29
(x) Been Used
(x) Fell Going Up The Stairs
( ) Licked A Cat
(x) Bitten Someone
(x) Licked Someone

SO FAR: 76

Level 30
( ) Been shot at/or at gunpoint
( ) Had sex in the rain
( ) Flattened someone's tyres
( ) Rode your car/truck until the gas light came on
( ) Got five quid or less worth of gas 

TOTAL: 76

Sunday, 30 November 2008

sleep

I came home so I could get some good uninterrupted quality sleep.

I did not sleep!

What is worse is that i think I no why, I usually take my lovely antidepressant every morning, yesterday I forgot and took it about 8 PM .

I was still awake at 5 am this morning.

I feel really crap today!


Thursday, 27 November 2008

Scrapbooking *THIS POST CONTAINS LANGUAGE THAT SOME PEOPLE MY FIND OFFENSIVE*

In the last few weeks I have discovered that there is indeed a new type of craft activity that I dislike, it is the art of the scrapbook.

I will say right now from the start that I have always been rubbish at anything vaguely artistic or crafty.

I’m a Guide leader that hates craft activities, which may well be a rarity.

My lack of talent in the craft department is not something that I’m really bothered about. Lets face it everyone is crap at something; some people are crap at lots of things. I’m crap at any activity requiring pens, pencils, wool, glue, glitter, fuzzy felt, paint or any other craft material.

As a child at school it used to bother me that my painting was not as good as anyone else’s, or that my roman chariot looked like a penguin- now I’m fine with my crapness I accept and love it as an individual feature of me.

My lack of crafty artisticness does occasionally cause me frustration. I can’t sow for example which is a relatively common skill that the vast majority of the population possesses. It is also a skill I find people assume I can do, I’m not entirely sure whether that is some deep routed stereotype that every woman in the land can sow, o the fat that I am a guide leader. Either way people are often shocked when it arises that I cannot sow. Even my totally blind mother can hand sow and does the majority of my sowing, so its not even that I can say its because of my disability I’m just crap at it!

So anyway I went off on a bit of a tangent there I am currently involved in a project that requires me to make a scrapbook.

Scrapbooking I have recently discovered is both an activity I do not particularly enjoy, one that I find very difficult and that realistically I am crap at. (After all making a scrapbook requires craft skills)

I can also conclude that scrapbooking is also a dangerous activity; I have indeed sustained a scrapbook injury.

Whilst cooking on Monday evening I burnt my thumb, it was quite a nasty one there was the sizzle and the smell of burning flesh, still there was no blood and after some time under the cold tap all was well until….

Later on in the evening whilst adding to my scrapbook I got UHU on my burn.

For those that don’t know UHU is a solvent-based glue that can stick anything. 

I used UHU because its good at sticking things together as its very sticky but when it dries I can peel off the large amounts of it that I get all over the place.

Unfortunately getting it on the area of burnt flesh and subsequently peeling it off was not good.

In short I peeled off the glue and a lot of skin came off with it. (That does not normally happen)

Lesson learned don’t attempt to do anything crafty if you already know you are crap at it.

Sunday, 9 November 2008

Ouch! The Streets, and a bit about me

[Wow yet again it appears to be quite some time since I last blogged, I really am getting lazy so am as of now going to commit to keeping my blog up to date.]

 

Ouch!


I have no excuses now for not keeping the blog up to date, the Ouch! Guest blogging program has been put to an end with the redesign of there website, so I am no longer writing for Ouch! I still have a webcam that technically belongs to them so you may well see me on Ouch! again in the future. 

Talking of Ouch! they have recently re designed there website and I would encourage anyone involved in web design to go and take a look at what a fully accessible website CAN look like. 

Lots of websites these days claim to be accessible to people that are visually impaired by offering the option of changing the text size, however in most cases this completely messes with the page layout text becomes crowded and overlaps other areas of text and usually becomes unreadable, the Ouch! website with its new design is fabulous!

The Streets 


Ok a band I'm really loving at the moment would have to be The streets, for anyone that has not heard there audio album offering I would seriously recommend it there album, is titled 'Everything is borrowed’ It’s really worth a listen. One of the, I think lesser-known tracks on the album is this one the lyrics of which I have copied and pasted especially for you!

The strongest person I know - The Streets


One of the first things about you I did see

Is that you verse your views quietly

When nature verses truths I get violent feelings

But softly time will reply that's wise

 

A delicate gesture of why you see

The best route through this being right through here

But met with a cute blind snide of fear

Best to go along with their idea

 

But , you gently take things slowly

You softly bowl them over

That’s the delicate way you’ve shown me

You’re the strongest person I know

 

You gently take things slowly

You softly bowl them over

That’s the delicate way you’ve shown me

You’re the strongest person I know

 

After taking the worst route, blatantly

Bang on cue we manage losing way

But in a squirmy backed and screwed up way

They actually managed passing you the blame

 

With that mad man wrapped with rage

Even then your temper stays exactly the same

And in that manner is the manner you stay

Beautiful person that's happily unchanged

 

You gently take things slowly

You softly bowl them over

That’s the delicate way you’ve shown me

You’re the strongest person I know

 

You gently take things slowly

You softly bowl them over

That’s the delicate way you’ve shown me

You’re the strongest person I know

 

In the heat of speech

Your words improve

Right out of reach in my stirred up words

But every time they f**king blurt out drool

I’m noticing they're all learning from you

 

Cos even though they know they cursed you

They should’ve admitted that they were fools

The next time they're wanting to work things through

The very first person they turn to is you

 

Cos you gently take things slowly

You softly bowl them over

That’s the delicate way you’ve shown me

You’re the strongest person I know

 

You gently take things slowly

You softly bowl them over

That’s the delicate way you’ve shown me

You’re the strongest person I know

 

You gently take things slowly

You softly bowl them over

That’s the delicate way you’ve shown me

You’re the strongest person I know

 

On a personal level


Well how am I? Now there is an intriguing question! I have had a few problems of late with my existing bone condition; in short my knee is playing up quite substantially. Approximately 2 years ago now I had a seriously large amount of physiotherapy on the knee in question, the effects of which would appear to have completely worn off. So here I am again feeling old beyond my years and in pain. I have now seen a doctor who has unfortunately not done a lot about it other than give me a prescription for 5 lots of Tubigrip and painkillers.

 

My problem with this is that its not going to sort out the long term issue (I am aware that nothing will do this completely), painkillers can become addictive and don’t alleviate all the pain very often and Tubigrip is fine as a temporary thing but the way the doctor suggested I should start wearing it all the time. This is a problem because Tubigrip is very flexible and elastic, it does not stay where it is put and with the knee joint in particular it creases up in the bend of the knee and digs in causing more pain.

 

Technicalities aside it is still essentially the same thing my bone condition and joints deteriorating, I’m not going to try and be upbeat about it, I’m going to be honest and say it’s a real blow, particularly as I have just started playing blind cricket again.

 

Other than all that I am doing ok, at the moment struggling slightly with a complete lack of creativity but I will get through that.

 

It could be worse

I keep reminding myself of this little mantra

It could be worse



Saturday, 4 October 2008

University begins

University life has begun I'm two weeks in now and thought I would share with you all the slide presentation that somebody made of our breaking news day.

Breaking news day was a mock up terrorist attack on a gas storage facility in Warsash! We interviewed eye witnesses, attended a press conference and then rushed back to produce the finished article.

Gus and I are settling in well to university life, unfortunately Gus has had a bit of a bumpy start and is at the moment temporally out of action but enjoying putting his paws up with nanny and granddad!

Sunday, 31 August 2008

About me

I was recently asked to write a piece all about me and disability, the scope was to challenge perceptions and raise awareness of visual impairment, this is what I came up with.


About me
By Jemma Brown

Hi I’m Jemma I’m 19 and about to start at Solent University to study journalism. I currently live in Gosport although I will be moving into halls in a few weeks with my guide dog Gus. I have multiple disabilities including visual impairment and a mild mobility impairment. I have the philosophy that I can do pretty much anything, it may take me longer, I may do it in a different way and it may be more difficult but I will do it. This is all about my disability and how it affects my day to day life.

The eye stuff

The eye starts to develop from 12 weeks of pregnancy, when my eyes where developing they did so with a cataract, this damaged them in many different ways, leaving me with a collection of eye conditions. I was diagnosed as having eye problems when I was 8 weeks old I then had my first operation to remove the cataracts at 11 weeks.

My mum also has the eye condition as it runs in her side of the family, although she has considerably less vision than me. I also have a blind aunt and a partially sighted cousin.

Throughout my childhood my vision varied, at one stage it was thought that I may one day have enough useful vision to drive, however that was not the case.

Because of the cataracts the pupil in my eye did not develop as it should have. I had surgery when I was younger to make my pupils bigger as they where too small. As a result of the surgery my pupils cannot get bigger or smaller to adjust to changing lighting conditions. This means my vision is considerably worse in the sun and when there is not much light.

When I was 11 my eye condition deteriorated, as a result of the surgery I had when I was younger, the fluid inside the eye ball was not draining away properly causing increased pressure in the eye. This is known as glaucoma and is relatively rare in people my age. The build up of pressure inside the eye can damage the optic nerve leading to irreparable loss of vision. To attempt to control the pressure inside the eye I was put on medication, and have been on several different treatments.

Unfortunately in May of this year the pressure inside my eye was found to be higher than it should be, up until that point my glaucoma had been under control and stable for the last 4 years.

As mentioned earlier I have quite an extensive collection of eye conditions (I’m greedy!), so I’m going to give you a brief run down:

Nystagmus - involuntary eye movement. My eyes often wobble without my control, I don’t normally even notice. It produces some very interesting photographs though!

Photophobia- excessive sensitivity to light. (NOT the fear of light) I am dazzled by light; car headlights, reflections, street lights and the sun all make it more difficult to see. I have done A level acting so am used to working under bright lights when I can’t see a thing. Having Gus has really helped me to be able to get out and about in the sun or when it is dark. The annoying thing about photophobia is that it’s a no win situation, can’t see in the sun and can’t see at night because of all the lights that are around! (Clubbing can be an interesting experience)

Squint- a squint is when they eye appears to be ‘stuck’ in one position. For me this meant that I was severely cross eyed as a child, I had surgery and eye patch therapy to correct this, but my eyes often turn inwards. This is linked to Nystagmus, because the muscles in my eyes are weak and under developed.

Corneal oedema- excess fluid in the cornea causing it to become cloudy. I have to confess that I actually don’t know very much about this one as I was only diagnosed with it in May of this year. It can be caused by glaucoma or previous cataract surgery. Right now it is relatively mild in my case and sometimes causes me to have blurry vision.

Glaucoma- excessive pressure with in the eye leading to optic nerve damage.

Cataracts- the clouding of the lens.

So what can I actually see? There is no simple answer to that question. The vision in my right eye is not very good most of the time I can just see fuzz. With my right eye I can read the top letter of the eye chart from 2 feet away. Fortunately my left eye is a lot better than that. In perfect lighting conditions I can get quite a long way down the eye chart. My vision varies immensely, for example I can hardly see anything at all outside when it is sunny or dark.

I have issues with perception of distance because I have one eye doing most of the work. So I often misjudge gaps, bumping into door frames is a regular activity. Having rubbish perception of distances means that I am very uncoordinated and clumsy.

I also find it difficult to recognise people, don’t take it personally when you next speak to me and I have no idea who you are. Life would be a lot easier if everyone who spoke to me did so by starting off saying their name and how I know them.


The bone stuff

I have a slight mobility impairment because I have odd joints! I have hypermobility syndrome meaning that a lot of my joints have a larger range of movement than they should have. The main downside of this is that I have some very weak joints and sprain things quite easily, although I have some amazing party tricks with the odd things some of my joints can do! I also have some misalignment issues with the lower half of my body; I have twisted hips, a twisted pelvis and twisted tibias (tibial torsion). That’s a bit of a mouthful but all it really means is that my knees ankles and hips are not lined up properly so I have a few issues with them. The main problem that causes is going down stairs, I’m fine going up but I find going down stairs quite tricky and I lack balance.


About my life

My independence is incredibly important to me. At this stage in my life there are still things I find difficult and there are times when I have to ask other people to help me to do something, but I try to be as independent as possible. Reading is possibly the area where I need the most assistance from other people, its not that I can’t read, it’s that I can’t read ‘standard’ size print. The font size I use most of the time is 18 with a really bold typeface.

I think that having a disability gives me potentially better problems solving skills than a person without visual impairment. I am always coming up with adaptive ways for me to be able to do something. Usually the best solution is also the simplest, whilst on my duke of Edinburgh expedition I put pieces of blue tack on the compass to allow me to do bearings – simple but effective.

My independence whilst out and about has improved greatly since I got my guide dog Gus. Gus is my first guide dog and goes everywhere with me, he is great as he often guides me around obstacles that I don’t even notice. Gus also really enjoys finding things like crossing buttons, doors and bus stops; I can now also go out knowing that I am not going to bump into anything!

As previously mentioned I am a full time student and I am about to go to university to study for a degree in journalism. When I’m not studying I can usually be found out and about somewhere, I play a Paralympic sport called goalball as well as blind cricket. I’m a really sporty person and I enjoy going to the gym and playing most sports, I like playing and sometimes watching football, badminton, tennis and cricket. I will be the first to admit that I am rubbish at most sport due to a complete lack of coordination but I still enjoy taking part.

I am also a (apprentice) Guide leader currently working with girls and young woman ageing from ten to fifteen years old. Guiding is something that I really enjoy I have helped to run various camping events and also taken a team of girls to complete in a county football event. Being a guide leader gives me the opportunity to be a big kid taking part in carnivals and all kinds of activities. Through guiding I have done kayaking, archery, rifle shooting, rock climbing, abseiling, skiing, sailing… the list is endless. When I am not out having fun with the Guides I also work as an adviser on visual impairment at national level, I have helped to write a book on including people with disability’s in guiding activities. As well as delivering disability awareness training.

When I am not doing all of the above I also manage my websites and blog for the BBC’s disability website Ouch! Writing is something that I really enjoy and I hope to do a lot more of in the future, I am also hoping to harass the lovely people at Ouch! for some work experience!

As you may have gathered I am a very active person and I do not like to let my disability get in the way of what I want to do in life, I probably want the same things out of life as any other person regardless of disability. I think it is important to challenge people’s perceptions of disability and that many of the barriers people with disabilities face can be overcome, quite often it is other people’s attitudes that provide the biggest barrier for a person with a disability.

Monday, 18 August 2008

Well I passed

I have indeed passed all the AS and A levels I took this year at college, I also passed my level one British sign language which was good.

Gus came with me to pick up my results and was a bit hit with everyone we had a few photos of us taken which may be used in college publications.

Finally my DSA application is all sorted, I had problems because the equipment I need came about 2 thousand pounds over budget, but luckily some items have been changed a little bit and swapped around and it all now comes in budget and is being delivered in a few weeks.

I can't wait to get my 15.4 inch macbook pro!

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