Crazy again

This post is therapy I will say that from the off set it is for my own benefit to get things out there so they are not just in my head.

After 8 ish months of being on antidepressants but psychologically well, I'm depressed and ill again.

If I am honest it snuck up on me covering my world with a big black blanket, removing the colour from my thoughts, I saw it coming so tried to take action, but nothing is immediate and now the situation is deteriorating. Whatever action I take has a waiting list, I have to carry on in the dark and Wait for my turn to get help.

I'm back in a place I thought I had left behind, with behaviours I thought I have left behind.

I am now already struggling with the day to day of university life, my insomnia has got so bad, that when I eventually fall asleep (usually sometime between 4 and 5 am) I literally cannot wake up in time for my 9am lectures. My body says that it is tired and I turn every alarm clock off in my sleep, sometimes walking across my room to accomplish the task.

Assignments seem impossible.

The evaluation assignment we have just been set is terrifying, at a time like this when I am not well I can't see the things that I am good at, I see every mistake I have ever made, I think I am crap at everything although that is possibly not the case.

In a way its good that I have at least recognised that I am unwell again, that's part of the battle isn't it admitting that you have a problem.

How did I get here? Is another part of the battle, I think I have been warn down by stress and recent events reminding me of past negative experiences.

So that it then I'm back to crazy depressed anxious Jemma, waiting for help.

Climbing barriers repeatedly

This year at university has been great, but filled with issues and problems and barriers to my learning.

It is important to mention at this point that there have been some fabulous people, and some committed and brilliant lecturers who never fail to meet my access needs and think of me in every circumstance.

Then there are those people who don't help at all, who for  a time could not possibly produce a large print hand out for me... until of course they were reminded by me of a little something known as The DDA (Disability Discrimination Act). After that shocker people started getting me large print handouts, and copies of power point presentations as they happen so I actually know whats going on. (finally)

That was one major issue resolved for the most part, it took 8 weeks but hey-ho sorted now.

There have however been countless issues.... one after the other in a near constant stream. Every issue is another barrier for me to battle to clime over, wonky legs and all!

Climbing over these barriers and battling to insure that people understand, is quite frankly wearing me down. 

Most of the issues I am facing could be avoided, a little extra planning could go a long way or a little organisation!

The most recent thing that has happened is the start of semester 2, it starts on Monday and I am expecting another bumpy ride at least in the beginning. The time table has completely changed, I have new staff teaching me and new rooms to find. All of this is going to throw up issues,  I am expecting that there will be glitches and I am fine with that.

To try and smooth out issues before they happen I have asked that all my new lecturers see something called a 'faculty form'. Basically the faculty form states what ALL of my disabilities and conditions are, it states what I need in lessons and spells out the basics. 

I would much rather people know that I am disabled before I walk through the door it allows them time to plan there lesson and avoids embarrassment.

Well I emailed the people concerned as a little don't forget to look at my faculty form, I have now received a email, that I was copied into from the faculty office with a word document that I produced at the begging of the year that concerns my visual impairment, I was at the time trying to simplify things purely relating to my VI.

Everyone always forgets my other conditions they may be marginally less significant than my Visual Impairment at this moment in time but that will not always be the case, I would rather people where prepared.

There was no mention of my bone condition (the wonky legs and hyper-mobile joints), the one that makes standing still in the same place for periods of time difficult, makes me wobble and makes stairs tricky.

There was no mention of my mental health, I may be in recovery right now but I am still receiving treatment on my way to being fully well again without medication.

I have come to the conclusion they either don't understand what my faculty form is, or that its filed away somewhere and they can't find it.

I don't get it  the faculty form is the most basic and simple of things all I want is for all my lecturers to see it, surly it s not that difficult.

It may be wearing me down but I will just have to keep climbing over the barriers.

Can I also say a big thanks to all the people out there who have ever tried to remove an access barrier from any ones path, your actions make all the other barriers seem achievable and remind those of us who have to climb the barriers that there are people looking out for them.

sleep

I came home so I could get some good uninterrupted quality sleep.

I did not sleep!

What is worse is that i think I no why, I usually take my lovely antidepressant every morning, yesterday I forgot and took it about 8 PM .

I was still awake at 5 am this morning.

I feel really crap today!

Ouch! The Streets, and a bit about me

[Wow yet again it appears to be quite some time since I last blogged, I really am getting lazy so am as of now going to commit to keeping my blog up to date.]

 

Ouch!

I have no excuses now for not keeping the blog up to date, the Ouch! Guest blogging program has been put to an end with the redesign of there website, so I am no longer writing for Ouch! I still have a webcam that technically belongs to them so you may well see me on Ouch! again in the future. 

Talking of Ouch! they have recently re designed there website and I would encourage anyone involved in web design to go and take a look at what a fully accessible website CAN look like. 

Lots of websites these days claim to be accessible to people that are visually impaired by offering the option of changing the text size, however in most cases this completely messes with the page layout text becomes crowded and overlaps other areas of text and usually becomes unreadable, the Ouch! website with its new design is fabulous!

The Streets 

Ok a band I'm really loving at the moment would have to be The streets, for anyone that has not heard there audio album offering I would seriously recommend it there album, is titled 'Everything is borrowed’ It’s really worth a listen. One of the, I think lesser-known tracks on the album is this one the lyrics of which I have copied and pasted especially for you!

The strongest person I know - The Streets

One of the first things about you I did see

Is that you verse your views quietly

When nature verses truths I get violent feelings

But softly time will reply that's wise

 

A delicate gesture of why you see

The best route through this being right through here

But met with a cute blind snide of fear

Best to go along with their idea

 

But , you gently take things slowly

You softly bowl them over

That’s the delicate way you’ve shown me

You’re the strongest person I know

 

You gently take things slowly

You softly bowl them over

That’s the delicate way you’ve shown me

You’re the strongest person I know

 

After taking the worst route, blatantly

Bang on cue we manage losing way

But in a squirmy backed and screwed up way

They actually managed passing you the blame

 

With that mad man wrapped with rage

Even then your temper stays exactly the same

And in that manner is the manner you stay

Beautiful person that's happily unchanged

 

You gently take things slowly

You softly bowl them over

That’s the delicate way you’ve shown me

You’re the strongest person I know

 

You gently take things slowly

You softly bowl them over

That’s the delicate way you’ve shown me

You’re the strongest person I know

 

In the heat of speech

Your words improve

Right out of reach in my stirred up words

But every time they f**king blurt out drool

I’m noticing they're all learning from you

 

Cos even though they know they cursed you

They should’ve admitted that they were fools

The next time they're wanting to work things through

The very first person they turn to is you

 

Cos you gently take things slowly

You softly bowl them over

That’s the delicate way you’ve shown me

You’re the strongest person I know

 

You gently take things slowly

You softly bowl them over

That’s the delicate way you’ve shown me

You’re the strongest person I know

 

You gently take things slowly

You softly bowl them over

That’s the delicate way you’ve shown me

You’re the strongest person I know

 

On a personal level

Well how am I? Now there is an intriguing question! I have had a few problems of late with my existing bone condition; in short my knee is playing up quite substantially. Approximately 2 years ago now I had a seriously large amount of physiotherapy on the knee in question, the effects of which would appear to have completely worn off. So here I am again feeling old beyond my years and in pain. I have now seen a doctor who has unfortunately not done a lot about it other than give me a prescription for 5 lots of Tubigrip and painkillers.

 

My problem with this is that its not going to sort out the long term issue (I am aware that nothing will do this completely), painkillers can become addictive and don’t alleviate all the pain very often and Tubigrip is fine as a temporary thing but the way the doctor suggested I should start wearing it all the time. This is a problem because Tubigrip is very flexible and elastic, it does not stay where it is put and with the knee joint in particular it creases up in the bend of the knee and digs in causing more pain.

 

Technicalities aside it is still essentially the same thing my bone condition and joints deteriorating, I’m not going to try and be upbeat about it, I’m going to be honest and say it’s a real blow, particularly as I have just started playing blind cricket again.

 

Other than all that I am doing ok, at the moment struggling slightly with a complete lack of creativity but I will get through that.

 

It could be worse

I keep reminding myself of this little mantra

It could be worse

I GOT IN!

Today I had an interview, given my issues with anxiety I was shit scared... still hoping for the best but really nervous.

Luckely it went well, it was at southampton solent universicty for there journalism course I was nervious, but I think I covered it well, and best of all I got.... an UN-CONDITIONAL offer!!!!!!!

Which as soon as it comes through on the system I shall be accepting, I'm so glad I got in, I really really wanted to do the course at solent and now I am!

Bad week

I have had one of the most ridicules emotional roller coaster weeks ever! Most of which has been on the down side of life. I find it so hard to write and be creative when my depressions taken hold and I am very aware that I want to blog both here and on Ouch! but I just don't have the ideas, or the drive. Here's a day by day account of my week!


Monday- Seems so long ago was OKish to start with but then as I was leaving bumped in to one of my teachers who had a bit of a go at me, informed me that I'm going to fail. Given the fact that I was a bit emotional due to the funeral on Tuesday this didn't go down well. Put me further down in to a deep low. I was so low in fact I couldn't go to guides.


Tuesday- Well Tuesday was expected to be bad I had to contend with going to see my GP which always fills me with fear, and going to the funeral of my godmother.

The GP was terrifying, she did actually remember to come and find me, which was at least one plus. Then I was slightly shocked as she asked me how she could help today and I was like "erm you told me to see you in two months" not the best start, I suppose I needed to feel remembered. Told her how bad things were how I can't concentrate academically and that I rarely sleep before 1 am. Basically the out come was an increase in dose of my med's and shes trying to speed up the counselling referral, other than that I get the impression there is absolutely nothing anyone can do!


The funeral was very sad as expected, it was a lovely service tho they read out a poem written by my godmother sue when she was just ten, i cry'ed from start to finish and I'm not ashamed of that it shows how much i care about her. I still cant quite process that she will never come to stay with us again and I will never hear her call me 'widget' ever again.


Wednesday- I approached with dread, its my busiest college day and was somewhat boring to say the least. the teacher of one of my courses really doesn't like me, or my Friend I don't no why she has to make it so obvious she doesn't like us. I hate to think what my report is going to look like.

Thursday- well that was interesting I have finally finished the immense horror that is the UCAS application form! hurrah!! so I had to pay for that and do all the running round college like a headless chicken trying to sort it out stuff.

Then I had a meeting with the head of LSU I was completely terrified but it went OK, she wants me to be more independent, its all she goes on about, kinda annoys me but never mind. Then the next thing she talked to me about Biology I'm rather behind, so I'm getting a session a week with the head of LSU to try and help me catch up.


Friday- This is where the emotional roller coaster cane in, I was HIGH! seriously I was really like me and I wasn't low, it was just so bloody random don't get me wrong a high is a nice thing when you have been low for so long but it was just so out of the blue, J even said I looked more "animated" I don't really understand what that means. In hindsight I have realised that the high was probably due to the increased dose of antidepressants and the beta blockers!


Basically that was last week.

My Art

Recently I have rediscovered my love of art, I'm not your usual art lover tho, I don't get classical art all tho I am often in awe of those famous artists as there works are skillful, just not me. I'm partially sighted so my disability denotes that I am unlikely to be fabulous at art in the world of fully sighted people and if I'm honest the thought of spending my weekend looking at a load of pictures hung on a wall is not fun.

Its amazing I can deal with even the thought of being artistic, the scars from school art lessons, being the only partially sighted one. In junior school I was the one who's drawing was never as good as anyone else's, or the one who's waterfall looked like a heap of wet newspaper. The other kids didn't really understand there was a reason I was so rubbish at being creative. Actually at some points the teachers didn't even get it I remember distinctly when I was in year 4 at school and my teacher said to the class 'people with glasses can see more than people without so they are even better at copying art'. I have no idea where she got that idea from, but I seem to remember it annoying me!



In secondary school it was little better if not worse, the art staff where patronising, really patronising, they gave up on me before I had even picked up a pencil, they could just tell, probably because of my disability that I would be rubbish. I had to endure the head of art pretending to no what my picture was of, getting round it by saying ' I like the way you have created movement' when I had actually drawn a rock. One of my favorite lesions of art (NOT) was when we where doing something, I can't even remember what it was but we where using very fine pencils and pressing very lightly, that was the idea anyway. So me, nose to paper forced by the teacher to use the same pencil as everyone else tried my best, what I ended up with was a landscape of hills and mountains and sky , my teacher actually said it was one of the best pieces I had done all year and gave me a merit. I was surprised but to be honest couldn't really see the whole picture so assumed it must have been sort of all right. well in next weeks lesson we where doing some painting type thing I opened my art book to the first available page did my art. Teacher came up to me to look at it and we where both shocked to discover I had actually painted all over last weeks work, I couldn't even see it was there.

So school art was pretty horrific, I mean that was a brief selection of the horrors, not including things from the other pupils!

I only really got in to art and thought i could do something constructive, possibly even good, after I brought my graphics tablet. For those who don't know a graphics tablet is basically a small pen and pad which you plug in to the PC and use instead of the mouse to do arty stuff. Its opened up a whole new world of creativity for me, I haven't been able to use my graphics tablet since my PC blew up last year, at that time I lost all my work, everything I had created.

Now finally on Thursday I reinstalled the software and shock horror it worked!

since then I have really realised just how much I missed not having it, I cant stop creating, doodling and generally making a virtual mess.



I have created a number of images (which can be seen in the slide show under the title of this blog) One of them I have even entered in to the mind M.A.D art exhibition. its called 'A world of brightness' and here it is.