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Showing posts with label mobility. Show all posts
Showing posts with label mobility. Show all posts

Saturday, 24 January 2009

Climbing barriers repeatedly

This year at university has been great, but filled with issues and problems and barriers to my learning.


It is important to mention at this point that there have been some fabulous people, and some committed and brilliant lecturers who never fail to meet my access needs and think of me in every circumstance.


Then there are those people who don't help at all, who for  a time could not possibly produce a large print hand out for me... until of course they were reminded by me of a little something known as The DDA (Disability Discrimination Act). After that shocker people started getting me large print handouts, and copies of power point presentations as they happen so I actually know whats going on. (finally)


That was one major issue resolved for the most part, it took 8 weeks but hey-ho sorted now.


There have however been countless issues.... one after the other in a near constant stream. Every issue is another barrier for me to battle to clime over, wonky legs and all!


Climbing over these barriers and battling to insure that people understand, is quite frankly wearing me down. 


Most of the issues I am facing could be avoided, a little extra planning could go a long way or a little organisation!


The most recent thing that has happened is the start of semester 2, it starts on Monday and I am expecting another bumpy ride at least in the beginning. The time table has completely changed, I have new staff teaching me and new rooms to find. All of this is going to throw up issues,  I am expecting that there will be glitches and I am fine with that.


To try and smooth out issues before they happen I have asked that all my new lecturers see something called a 'faculty form'. Basically the faculty form states what ALL of my disabilities and conditions are, it states what I need in lessons and spells out the basics. 


I would much rather people know that I am disabled before I walk through the door it allows them time to plan there lesson and avoids embarrassment.


Well I emailed the people concerned as a little don't forget to look at my faculty form, I have now received a email, that I was copied into from the faculty office with a word document that I produced at the begging of the year that concerns my visual impairment, I was at the time trying to simplify things purely relating to my VI.


Everyone always forgets my other conditions they may be marginally less significant than my Visual Impairment at this moment in time but that will not always be the case, I would rather people where prepared.


There was no mention of my bone condition (the wonky legs and hyper-mobile joints), the one that makes standing still in the same place for periods of time difficult, makes me wobble and makes stairs tricky.


There was no mention of my mental health, I may be in recovery right now but I am still receiving treatment on my way to being fully well again without medication.


I have come to the conclusion they either don't understand what my faculty form is, or that its filed away somewhere and they can't find it.


I don't get it  the faculty form is the most basic and simple of things all I want is for all my lecturers to see it, surly it s not that difficult.


It may be wearing me down but I will just have to keep climbing over the barriers.


Can I also say a big thanks to all the people out there who have ever tried to remove an access barrier from any ones path, your actions make all the other barriers seem achievable and remind those of us who have to climb the barriers that there are people looking out for them.

Friday, 23 January 2009

Change will happen to ME

It seems strange to be writing about change as I have just changed the layout of this blog, it seems to be creating a little sub theme, but the change I am referring to here is a life change.


It's at this point I need to mention Beth and her blog 'Screw Bronze'; I have been following Beth's blog ever since the start of the Ouch project and she is a truly fantastic example of a human being, if you do nothing else today just pop over to her blog and have a read. Her latest post titled 'Badminton, illness and change' has really hit me and helped me with a change I am getting to grips with right now.


As I am sure readers will be aware I have a bone condition in addition to being VI its that (not so) little thing that everyone ALWAYS forgets about, but trust me I never forget about it!


My condition has always been one that is likely to flare up and deteriorate over time, I have always known this but today I have come to a bit of a milestone.


After walking down The (EFFING) Eiffel Tower and then yesterday (just as things where improving) managing to slip over in the mud I am having a very serious flare up.


My left hip and knee take it in turns to be very painful and I am really struggling to balance.


I have hit the point I always knew would happen, it is time to obtain a walking stick.


This is for me a bit of a big thing, I am possibly being a bit pathetic but now the time has come I am finding it rather difficult.


People will see me and Gus and then a stick I'm worried about what will go through peoples heads, questions they might ask and the reactions of my friends, acquaintances and complete strangers.


Reading Beth's blog has made me realise, its just an adjustment to a new normal for me and everyone else, I have no need to feel self conscious or concerned about peoples perceptions and prejudices.


I am ME; a stunningly beautiful, 20 year old, independent. visually impaired woman who sometimes needs to use a stick to get about and more importantly I will not be ashamed of what I am.


OK its a change for me to think about using a stick, but it will only be a change for so long, and then it will become the norm, nothing will be different.

Saturday, 4 August 2007

The eye strain is over

I have finnally recoverd enough to post in here, I have had the worst eye strain I have ever experenced, its been awful and ive been very grouchy and sorry for myself.

It all started when I brought a book, "one unknown" by Gill hicks. Its a really intresting book dipicting her life before and after the London bomings and her recovery, really gripping. unfortunatly not avalible in large print. Fuck it! I thought to myself as I brought it I will read it evan if it takes me a decade to compleate. I started reading it on monday and after an unkown period of time I suddenly found myself against a brick wall of, seriously bad headache blurry vision aned my eye feeling like somene was trying to pull it out with a spoon. I think it was worse because it was only my 'good' left eye that was affected, I cant see enough to read with the right, unless its in hugely massive print! As I said erlyer the eye strain was the worsed I have ever had, I could no longer read, text my mates, watch TV and most tragically I couldnt evan use the PC , evan with my screen magnification set to a bigger zoom than normal. I was cut off from the world stuck and bored, I was fustrated because I wanted to keep reading the book but my disability was stopping me, why cant they just produce more books in large print? I thought to myself in a low bored out of my mind moment.

Then again I sarted pineing, pineing for a DAISY player, all I wanted to do was read a book. The problem being That DAISY players start at about £250 , way out of my price range. I could loan one, with a years membership to the RNIB's DAISY libery, but evan that is out of my price range. But I continue to dream about having my own digital audio informaton system at my fingertips, college and later university could get the softwhere and put entire textbooks on to DAISY format wich I can then use to acess the same information as everone else with the same ease and without lugging lever arch files of bits of textbook around with me everyday!


On tuesday my eye strain was still evedent, and as I have allredy posted about I had a lovly trip to my local eye check up.

Then wensday was the big day my finall Guide dog assesment, it was the day wich deiceded if one day I will be a guide dog owner or not, it was very intresting. It started in a very intresting way, I whent out of the wrong exit of the train station and got a call from the center asking where I was and that they where waiting for me, I said I was stood outside the train station, I was then informed that there are actully 2 different exits and I was at the wrong one, I was also told they would meet me on platform one, so over the bridge I went to platform one, wich was seriously crowded by people, and then luckerly they spotted me! what a fab impression I made , getting lost before I had evan started the day!

The assesment started by meeting the other 3 people who where being assessed, and then having a small introduction to it all, we then went out on a short harness walk with an instructer . It was very odd we learnt how to follow the movment of the harness and the basic commands, we learnt how to turn left and right how to start and stop walking, whilst all the while tellign the 'dog' "good boy", it was strange talking to a GDMI (guide dog mobility instructer) like a dog, it got wierder still however. The next thing we lernt on this walk was how to correct bad behaviour, this invoved sentements from the instrucer like "im sniffing".

Next was a talk on genral dog care, what trainign is like, how the dogs work, vets and questions from us. we also lernt about safty whilst out and about and where told we are expected to wear a florecent sam brown or vest, I was incredibly pleased to hear that we could sign a disclaimer stateing that we took full responcibility for not wearing the protective clotheing providided. Thank god just the thought of wearing a florecent sam brown to college is horrific, saying that maby I could turn it into a fashion statement or evan better still start of a new trend!

Then we had lunch and another talk from a real guide dog owner who told us more about what its actully like to have a guide dog as a mobility aid, then made a compleat fool of myself again by walking in to the side of a sun umbrella, the rubber tip of it went strieght into my ear wich was lovly.

After lunch it was the exciting bit, we actully got to walk with a real life guide dog in training in publick, I was really nervous about this and makeing a compleate fool of myself, my dog was called Masie and was a very small labridor retriver cross and was a very dainty little dog, it was amazing putting in to work all the stuff we had done in the morning and it felt compleatly liberating to be walking, being led by a dog who I trusted compleatly and led around all kinds of obsticales from people to bikes, and bustops, it was amazing.

Then we went back to the center and waited for the results of the days assessments, we would eatch be spokern to individually so it was a very tence amount of time that felt like hours, none of us knew what to say and there was so much tension in the room its undiscribable, then we where called in one by one.

Then it was my turn and I was so nervious trying desperatly to prepare myself for the worst, but knowing deep down inside that I thought I had done really well and I couldnt think of anything I had done really badly or messed up, I sat there listerning to the the instructers just wishing for them to blurt it out but I had to listern to process what they where explaing to me then the words, "its a yes your going to be put on the list" I smiled and must have shown a great release of tension.

Then things got a bit complicated it was explained to me that I am now going to have a very long wait for a dog and that they where unsure weather it was the right diecsion for me right now they evan said " its not to late to chang your mind" !!!!! as if I would change my mind now this was compleatly what I wanted, what I have allways wanted to turn it down now I couldnt evan contimplate. They where also concerned because of my age (18 for those of you that dont no) it was explained that I couldn't take the dog clubbing and get drunk and things like that, I was slightly shocked that they made the judgement I was a wild student whitout really noing me, I hate clubbing and never go, as for drinking, I do not drink, I'm not supposed to drink on my medication so I dont! I do understand why they had to say all this and there resons but I htink they could have done it in a better way.

I left the center and got a lift back to the station where I called my mum and told her the news, then sent everyone a text message. I still felt a mixture of joy in that I had passed as it where but also a huge sence that I had been judged and people had deicided what I was, who I was purly based on my age, I think the could have talked about there concerns in a more positive mannor.

But I'm done with being annoyed now, I just cant stop talking about it and telling the intire world that I am on the list, I want to shout it from the rooftops.

P.S apologies for the spelling, the spelchecker is eather down or just not working, that or I have spelt everything right, which is highly unlikely!

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